UCL  IRIS
Institutional Research Information Service
UCL Logo
Please report any queries concerning the funding data grouped in the sections named "Externally Awarded" or "Internally Disbursed" (shown on the profile page) to your Research Finance Administrator. Your can find your Research Finance Administrator at https://www.ucl.ac.uk/finance/research/rs-contacts.php by entering your department
Please report any queries concerning the student data shown on the profile page to:

Email: portico-services@ucl.ac.uk

Help Desk: http://www.ucl.ac.uk/ras/portico/helpdesk
Publication Detail
Attitudes towards a programme of risk assessment and stratified management for ovarian cancer: a focus group study of UK South Asians' perspectives.
  • Publication Type:
    Journal article
  • Publication Sub Type:
    Article
  • Authors:
    Hann KEJ, Ali N, Gessler S, Fraser LSM, Side L, Waller J, Sanderson SC, Lanceley A, PROMISE study team
  • Publication date:
    18/07/2018
  • Pagination:
    e021782
  • Journal:
    BMJ open
  • Volume:
    8
  • Issue:
    7
  • Medium:
    Electronic
  • Status:
    Published
  • Print ISSN:
    2044-6055
  • Language:
    eng
  • Keywords:
    PROMISE study team
  • Addresses:
    Department of Women's Cancer, EGA UCL Institute for Women's Health, University College London, London, UK.
Abstract
Population-based risk assessment, using genetic testing and the provision of appropriate risk management, could lead to prevention, early detection and improved clinical management of ovarian cancer (OC). Previous research with mostly white British participants found positive attitudes towards such a programme. The current study aimed to explore the attitudes of South Asian (SA) women and men in the UK with the aim of identifying how best to implement such a programme to minimise distress and maximise uptake.Semistructured qualitative focus group discussions.Community centres across North London and Luton.49 women and 13 men who identified as SA (Indian, Pakistani or Bangladeshi), which constitutes the largest non-European ethnic minority group in the UK.Seven community-based focus groups were held. Group discussions were transcribed verbatim, coded and analysed thematically.Awareness and knowledge of OC symptoms and specific risk factors was low. The programme was acceptable to most participants and attitudes to it were generally positive. Participants' main concerns related to receiving a high-risk result following the genetic test. Younger women may be more cautious of genetic testing, screening or risk-reducing surgery due to the importance of marriage and childbearing in their SA cultures.A crucial first step to enable implementation of population-based genetic risk assessment and management in OC is to raise awareness of OC within SA communities. It will be important to engage with the SA community early on in programme implementation to address their specific concerns and to ensure culturally tailored decision support.
Publication data is maintained in RPS. Visit https://rps.ucl.ac.uk
 More search options
UCL Researchers
Author
Women's Cancer
Author
Epidemiology & Public Health
University College London - Gower Street - London - WC1E 6BT Tel:+44 (0)20 7679 2000

© UCL 1999–2011

Search by