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Publication Detail
Development of Healthy Eating and Active Lifestyles for Diabetes (HEAL-D), a culturally-tailored diabetes self-management education and support programme for black-British adults: a participatory research approach
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Publication Type:Journal article
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Publication Sub Type:Article
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Authors:Goff LM, Moore AP, Harding S, Rivas C
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Publisher:Wiley-Blackwell
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Publication date:07/06/2021
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Pagination:e14594
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Journal:Diabetic Medicine
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Status:Published
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Country:England
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Print ISSN:0742-3071
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Language:eng
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Keywords:African, Caribbean, black-British, culture, education, ethnicity, health services, self-management, type 2 diabetes
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Author URL:
Abstract
AIMS: To develop an evidence-based, culturally-tailored, diabetes self-management education and support programme for black-British adults, called Healthy Eating and Active Lifestyles for Diabetes (HEAL-D), using participatory methods to engage key stakeholders in the intervention design process. METHODS: Black-British adults living with type 2 diabetes, healthcare professionals and community leaders were engaged in an intervention development study. The intervention structure, format, content and delivery were developed through three phases of participatory research: phase 1, formative research, involved focus groups and interviews; interactive co-development workshops were conducted in phase 2; and phase 3 focused on materials development. RESULTS: In phase 1, focus groups and interviews identified the importance of nurturing collectivism, a reliance on informal sources of information/advice, barriers to attending appointments associated with competing priorities of work, travel and carer commitments, and a preference for directness and simple, clear advice/messages. A priority for healthcare professionals was the intervention embedding within current primary care structures and aligning with incentivised targets/metrics. Phase 2 (workshops) highlighted key requirements: avoidance of medical settings, appropriately trained and culturally knowledgeable educators, flexible appointments, preference for verbal and visual information and avoidance of technical/medical terminology. In phase 3 (materials development), culturally sensitive videos, short films and information booklets were developed to convey educational messages, and food photography was used to provide culturally relevant dietary advice. CONCLUSIONS: Participatory methods provide a means to understand the needs of specific communities. This approach enables the development of healthcare interventions that are sensitive to the needs of service users and providers.
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