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Publication Detail
Development of Healthy Eating and Active Lifestyles for Diabetes (HEAL-D), a culturally-tailored diabetes self-management education and support programme for black-British adults: a participatory research approach
  • Publication Type:
    Journal article
  • Publication Sub Type:
  • Authors:
    Goff LM, Moore AP, Harding S, Rivas C
  • Publisher:
  • Publication date:
  • Pagination:
  • Journal:
    Diabetic Medicine
  • Status:
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  • Print ISSN:
  • Language:
  • Keywords:
    African, Caribbean, black-British, culture, education, ethnicity, health services, self-management, type 2 diabetes
AIMS: To develop an evidence-based, culturally-tailored, diabetes self-management education and support programme for black-British adults, called Healthy Eating and Active Lifestyles for Diabetes (HEAL-D), using participatory methods to engage key stakeholders in the intervention design process. METHODS: Black-British adults living with type 2 diabetes, healthcare professionals and community leaders were engaged in an intervention development study. The intervention structure, format, content and delivery were developed through three phases of participatory research: phase 1, formative research, involved focus groups and interviews; interactive co-development workshops were conducted in phase 2; and phase 3 focused on materials development. RESULTS: In phase 1, focus groups and interviews identified the importance of nurturing collectivism, a reliance on informal sources of information/advice, barriers to attending appointments associated with competing priorities of work, travel and carer commitments, and a preference for directness and simple, clear advice/messages. A priority for healthcare professionals was the intervention embedding within current primary care structures and aligning with incentivised targets/metrics. Phase 2 (workshops) highlighted key requirements: avoidance of medical settings, appropriately trained and culturally knowledgeable educators, flexible appointments, preference for verbal and visual information and avoidance of technical/medical terminology. In phase 3 (materials development), culturally sensitive videos, short films and information booklets were developed to convey educational messages, and food photography was used to provide culturally relevant dietary advice. CONCLUSIONS: Participatory methods provide a means to understand the needs of specific communities. This approach enables the development of healthcare interventions that are sensitive to the needs of service users and providers.
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